On November 8, 2010, we welcomed our little sweet, beautiful Julian. He was born via c-section and when the doctor retrieved him from inside my belly, she lifted him up to me and said, “here’s your miracle baby” and she was right.
When I was pregnant with Julian, I had some complications that required me to visit the antenatal unit at Bridgeport Hospital every week, for an ultrasound. They had to keep a close eye on him. Once we approached the end of my third trimester, the doctors, family and I were all jumping for joy that he was doing great and going to be born soon. It seems that my body’s complications didn’t interfere with his growth at all and I was so relieved. So, when he was born, we were beyond excited that he was finally here.
Unfortunately, that relief and happiness was cut very, very, short. Within a few minutes of his birth, the doctors rushed him over to the NICU. We were shocked and didn’t understand what was happening, since he seemed to be fine via every single ultrasound. Since Lilliana, our first born, was born prematurely, at 34 weeks, and had to spend a week in the NICU for assistance with breathing, we weren’t too concerned. However, Julian was born on time and weighed 6 lbs 11oz. so it didn’t make much sense.
Well, at that time we didn’t know he had SMA, we only found that out a couple days after Christmas. With his illness, his health was quickly dissipating and he should have gotten progressively worse as soon as he was born. But here is the miracle part. He actually got better after a couple weeks in the NICU, he was breathing on this own and feeding from my breast and bottle. It was our perseverance and our deep, deep desire to go home and be together as a family, and our love for each other, that made him succeed through those first two weeks. He was a fighter!!! and he wanted to go home with Mommy, Daddy and his brother and sister.
Even though, he suffered through many, many more tragic episodes during our stay at home, we were able to have him home with us for several weeks, especially to celebrate Christmas together. I was able to hold him on Christmas morning, cuddling with him as his brother and sister opened gifts. It was such a beautiful morning and I will never, ever forget it. It was such a blessing and so very special to have such an amazing baby, soul, spirit with us during such a beautiful, time. To this day, I believe with my whole heart, that Julian was our special Christmas miracle.
Even though he was here for such a very short time, he made such an impact on our entire world and to this day, we all talk about him and love him every single day. He’s still our son, brother grandson, nephew and cousin. His spirit continues to live with us (but I really do miss holding him and kissing his sweet baby face).
So, today we celebrate and honor his 3rd Birthday. Happy Birthday to our sweet, baby Julian.